In 1987 after intensive tests by very good rheumatologist I was diagnosed with Systemic Lupus Erythematosus (SLE). Which is not an automatic death sentence these days. My history of Sjogren’s syndrome, Raynaud’s, pericarditis, angioedema, Hashamoto's thyroiditis, kidney problems and seizure disorders, years of chronic fatigue, depressions, pain, swelling, cyclical appetites, sleeping problems, funny rashes, and being unable to see in sunlight or at night now made sense finally, finally. No more suffering with doctors who thought I was a hypochondriac among other things. and there were medications.
I kept the news to myself.
I was studying for another advance degree. (I have a Ph.D. Theater and a MBA.) My career was taking an upwards turn. I was the local president of an organization preparing a national convention. I had mention in "Who's Who in the Midwest and American Women" (a highschool dream). My family was progressing well through their lives and careers. I had a working professional and financial programme to complete before this diseases progressed . I was even considering a city political office proposal.
I was hit with one of the biggest test of faith and character in my life. In addition to CNS & CFS, multiple system necrosis, Lupus traveled to my brain.
I couldn't remember my way to work, home, or the doctors. Language and numbers would take vacations and didn't tell me they were leaving. If it happend 3 seconds,three days or 3 years ago I might not remember. This I couldn't keep to myself and any agendas I may have had were trashed...
While fluid was being removed from my heart and lungs, a physiatrist and physical therapist suggested computer graphic-photo reconstruction which has lead to web page construction.
The other day, when a some said 'hello', I said "tomatoes." I don't dare carry cash or leave home without specific written directions (then I'm not sure where I put them).I can no longer write or print legibly spell with any accuracy (thank heavens for spell checks), answer a ringing telephone in another room or drive my car. "Brain Fog" for me is not an inconvenience but a way of life. I've found ink pens and pencils neatly placed in the silverware drawer, coats folded and put in drawers, the drycleaners and pharmacy call to remind me of clothes or that I called in a prescription. I'm learning to cope and hope you find my latest therapeutic dragon slaying enjoyable and informative.